Where is the Patient in All of This?

  • July 23, 2025

"Where is the patient in all of this?" That question plagued me through 12 chemo infusions, 30 radiation treatments, four surgeries, and countless scans during my Stage 3b colorectal cancer treatment. The question echoed again as I sat beside my husband 15 years later through his bone marrow transplant for myelodysplastic syndrome (MDS) in 2021.

Fifteen years had passed. Almost nothing had changed.

Healthcare's machinery keeps churning—but it's too often built to accommodate doctors, payers, and protocols. Not patients.

What Consumer Brands Know That Healthcare Doesn't

Before cancer rewrote my life, I spent 15+ years working with brands obsessed with seamlessly fitting into customers' lives: Harley-Davidson, Williams-Sonoma, Apple, Target, Levi Strauss. We stressed every detail of the customer experience. We observed shoppers in their natural environments—kitchens, playgrounds, motorcycle rallies—catching behaviors surveys never reveal. We shadowed customers using our products, navigating our spaces, and connecting with each other and with their family.

Living and breathing the "customer-first" gospel for two decades showed me what real loyalty looks like:

  • Harley riders tattoo the bar-and-shield on their bodies
  • Pottery Barn fans recreate entire catalog rooms
  • Apple devotees camp for days before launches

Iconic brands start with human truth and design everything around it.

Healthcare rarely does.

The Ten-Point Gap Between Healthcare and Human Nature

Healthcare isn't lacking talent or technology—it's just governed by a completely different rulebook:

1. Follow the money, lose the human. Most healthcare workflows are built for reimbursement codes, not real human journeys. Case in point: despite public trust in hospitals plummeting from 71% to 40% between 2020 and 2024, the system has doubled down on reimbursement codes at the expense of patient experience.

2. Access is a logistics puzzle. The average primary care appointment is now 38 days out—turning healthcare into a guessing game of "How sick will I be next month?"

3. A vocabulary of blame. "Non-compliant" and "poor adherence" shame patients when 8% of adults ration prescriptions due to cost—a design failure, not a character flaw.

4. Tools are built for billing, not belonging. EHRs optimize charge capture while patient portals feel like afterthoughts. By comparison, Apple designs every pixel around user emotion—then figures out operations.

5. The patient's voice gets buried. By market launch, therapies and med devices have been shaped by R&D, regulators, payers, and lawyers. The patient’s voice is often a late addendum, rather than being "the brief" as it is in consumer brand building.

6. Feedback loops stuck in slow motion. Consumer brands pivot overnight; medical-legal cycles stretch for months.

7. Siloed data fractures journeys. Without unified systems, moving from symptom research to prescription refill feels like navigating a maze—not the smooth Amazon-to-doorstep experience people expect everywhere else.

8. Pricing opacity kills trust. The same MRI costs $400 or $4,000 depending on zip code and insurance coverage. Loyalty dies in uncertainty.

9. Insider language amplifies fear. "Cancer floor" and "blood draw" sound routine to providers but land like gut punches for patients.

10. Communication stuck in 1995. Phone tag and fax machines in a world of real-time chat and instant notifications breed distrust and missed care.

The Consumer-Grade Healthcare Revolution

Here's what gives me hope: these aren't just system failures—they're massive opportunities disguised as obstacles. Every frustration is a chance to build something patients will love instead of endure. My journey from brand boardrooms to cancer wards taught me how to unite rigorous science with radical empathy through ten essential principles:

1. Mirror Real-Life Care Pathways. Design one intuitive journey from online search through prescription refill. Your brand should fit patients' lives, not force them to fit yours.

2. Lead with Human Desire, Not Data Points. "Hike pain-free with your kids" beats "83% pain-reduction efficacy" every time.

3. Translate Science into Lifestyle Stories. "Optimize your energy" resonates. "Maintain normoglycemia through structured glycemic monitoring" sounds like homework.

4. Design for Adherence, Not Just Acquisition. Day-40 engagement matters more than cheap first clicks.

5. Measure Relief Alongside ROAS. Track anxiety reduction and consumer-trust scores. Monitor whether patients feel truly understood.

6. Earn Clinical Credibility Without Lab Coats. Peer-reviewed evidence in plain English builds provider credibility while staying consumer-accessible.

7. Treat Trust Like Currency, Because It Is. One overstated claim can erase lifetime value overnight.

8. Operationalize Empathy. Every touchpoint—voice, imagery, support scripts—should sound like a friend who gets it.

9. Build Accessibility from Day One. Multilingual content and inclusive design expand reach and goodwill.

10. Close Loops with Living Data. Spot adherence drops in days, feed insights to R&D in weeks.

Why This Matters Now

Science keeps you alive. Humanity keeps you going.

Brands that master this create what healthcare desperately lacks: patients who choose you, champion you, and come back not because they have to, but because they want to. Tattoos optional. The opportunity to win patient loyalty while competitors chase codes isn't just massive—it's life-changing.

If you're building a consumer health or wellness brand that aims to treat the person—not just the condition—we’d love to help. Let’s put the patient back at the center, where they belong.

Contact us to start the conversation: www.wheeldow.com